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They face difficult choices about treatment, independence, safety, long-term care, and end-of-life decisions. Those living with Alzheimer’s, their families, and their friends also struggle with a myriad of practical issues as the disease slowly robs them of their memory, their thoughts, their speech, and their motor functions. I also worry about the huge personal and financial impact that a diagnosis of Alzheimer’s could have on my family. I also carry a genetic trait known as APOE-e4 that makes me far more likely to develop the disease, and to do so at a younger age.Īs someone whose career and self-worth are tied to my ability to think and write creatively, the very thought that I could slowly lose everything that makes me who I am terrifies me. I have immediate family members who have been affected by Alzheimer’s disease, as patients and as long-term caregivers. These issues are particularly important to me.
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We hosted a conference on Alzheimer’s disease at the College last week, inviting a distinguished group of physicians, researchers, caregivers, advocates and policymakers to discuss the ethical and legal challenges of diagnosing and treating those with the disease. If you are having any issues, shoot us an email, Contact MPGH Support.By Sean Philpott-Jones, Director of the Center for Bioethics and Clinical Leadership
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